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J Korean Med Assoc > Volume 49(7); 2006 > Article
Journal of the Korean Medical Association 2006;49(7):571-576.
DOI: https://doi.org/10.5124/jkma.2006.49.7.571   
Strategies for Protecting the Privacy in Genetic Testing
Young Joo Cha
Department of Laboratory, Chung-Ang University College of Medicine, Korea. chayoung@cau.ac.kr
Abstract
As genetic information is not changeable lifelong and might be used as disease predictors in a family, it requires special protection. Private genetic information is kind of individually identifiable health information, also known as 'protected health information (PHI)', which consists of individual identifier and individuals' health information. The removal of individual identifier from PHI is called 'deidentification'. For every institute that deals with PHI, the deidentification process and designation of a privacy official responsible for the implementation of privacy procedures could be urgent and practical strategies for protecting the privacy in genetic testing. However, for better patient care, deidentification would not be recommended when PHI flows among medical staffs.
Key Words: Private genetic information, Protected health information, Deidentification, Privacy official
 


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